tag:blogger.com,1999:blog-69910942808745349182024-03-04T20:07:47.852-08:00821 For Anna - A Leukemia JourneyJohn Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.comBlogger50125tag:blogger.com,1999:blog-6991094280874534918.post-19212753027323814442015-03-09T15:35:00.001-07:002015-03-09T15:35:18.306-07:00Day 435 -Let's get wired!During Anna's course of treatment she has had numerous siezures. Luckily she has escaped harm everytime. In the search for answers why she spent an overnight at NY Presbyterian in NYC for an EEG too motor her brain activity for 48 continuos hours. <div><br></div><div>As always Anna just went with the flow. Hoped I'm the car on the way to the big city and never complained once. Shortly after arrival the technician started to connect dozens of electrodes to her cute little head. </div><div><br></div><div>#LoveTheKid</div><div><br></div><div><div class="separator" style="clear: both;"><br></div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-60506343081766893992014-11-01T05:33:00.003-07:002014-11-02T01:13:55.051-07:00Day 365 - What did you do this past year?So you may be wondering where the journey has been going since June. For those of you just tuning in we are one year in to a 2+ year treatment plan to #BeatLeukemia. <br>
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As this post is being written, I recall where we were a year ago. I also reflect on the 364 days that followed. As you know Anna's Journey has been filled with ups and downs to say the least. <br>
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I think of a then 8 year old who sat bravely in the hospital on Halloween and the following day when under anethesia for a bone marrow test. Who then broke down screaming and crying in our arms when she heard that she had Leukemia. Once past the tears she prepared for the battle of her life and handled it like I never could. <br>
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This horrific moment one year ago however brought us love and compassion in ways we never could have imagined. From our families and friends to the overwhelming support of a community. You all followed and supported us in ways we could never express enough gratitude for. <br>
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So what's happened since June?<br>
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Anna ......... </div>
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Went to Prom @ <a href="http://www.mskcc.org/" target="_blank">Sloan</a></div>
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<tr><td class="tr-caption" style="text-align: center;">Prom with Queen Dr Kobos & Leukemia Team<br>
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Got A Pool!!!!</div>
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Did Some Rock Climbing (AKA Physical Therapy)</div>
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Planted A garden</div>
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Took some selfies!</div>
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Went on a huge construction site in NYC!</div>
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Got her port removed!</div>
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Went to a Yankee Game!</div>
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Went to MAINE!!!!!!</div>
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<tr><td class="tr-caption" style="text-align: center;">Lobster YUMMMMMMM</td></tr>
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WENT BACK TO SCHOOL!!!! </div>
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Met <a href="https://twitter.com/LukeBryanOnline" target="_blank">LUKE BRYAN</a> !!!</div>
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During all of this Anna has been a real Warrior. She has spent many days and nights in and out of the hospital, experienced multiple seizures, received many chemo treatments and so much more. We are so proud of her and Thrilled for the exceptional care she is receiving at Memorial Sloan Cancer Center. <a href="http://www.mskcc.org/videos/more-science-less-fear" target="_blank">MoreScienceLessFear</a> She is still in REMISSION! and we are hopeful it stays that way!!</div>
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Thank you will never be enough to all who continue to support her....But Thank you !</div>
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<br>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com1tag:blogger.com,1999:blog-6991094280874534918.post-4230367028017207342014-06-15T17:35:00.001-07:002014-06-22T03:31:54.316-07:00Day 225 - The RaceLeading into this day Anna has been feeling great and really hasn't seen all if her friends in months, so she was really looking forward to the race! <div><br></div><div>She helped the night before to stuff all of the race day bags. Then got up and to Merwin Meadows park by 6:45am. Not before long cars started filling up the parking lot and all of the amazing volunteers went into action. It was spectacular to see it all come together. </div><div><br></div><div>Anna was beyond excited to be spending time with her friends that she has not seen in months. They laughed, ran, screamed, danced and sang! It was the best pre-stepfathers day gift ever! I loved seeing Anna just be a kid! </div><div><br></div><div>Now 5 minutes to race start we play the national anthem and got a great surprise when Anna and a few friends started to sign it live. And they sang it very very well! </div><div><br></div><div>Now 8:15 sharp Anna starts the race with the sound of an air horn! She was beyond excited to see how many people were racing on this day for her. He smile as always was infectious. </div><div><br></div><div>After 19 minutes the winning runner made it back across the finish line. Amazing how fast he is. Then our first ace female less than 1 minute behind. One by one Anna and her buds gave high 5's to every runner that crossed the finish line. </div><div><br></div><div>It was an amazing day! As I've said many times before, "thank you" will never be enough to express our gratitude for all of the support. </div><div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiedQmV-qOou17gRkvgW-dNaVxe-JKeI5UlmW6q9iaof-bPt8uR11NIdHlBwDn2tsFdv7dSII9hJzSIByQcB6jLw1G1kasDG6MWV49Fgjy3MZCMdZmn4Yj04Cs3pVcGTD-7GlenGYG2HfUi/s640/blogger-image-1556158579.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiedQmV-qOou17gRkvgW-dNaVxe-JKeI5UlmW6q9iaof-bPt8uR11NIdHlBwDn2tsFdv7dSII9hJzSIByQcB6jLw1G1kasDG6MWV49Fgjy3MZCMdZmn4Yj04Cs3pVcGTD-7GlenGYG2HfUi/s640/blogger-image-1556158579.jpg"></a></div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-43356899051359039372014-05-02T09:57:00.001-07:002014-05-02T09:57:49.155-07:00Day 181 - Seeds of change<div class="separator" style="clear: both;">Today Anna had a great time with one of her best buddies. They planted some seed to grow tomatoes and peppers. It was just a great day for her to not be doing Dr stuff! Xoxo<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1UaSe9yX0Slx0RrtEmuAPtdNQHGAphI0WyWQTr_uM0BQtF4gQ9RMiCOABoSMNFccgO9Im_L-T-ZrnBudtSftjpYLQP5nLwt0R3aGD5fU-nwH2xl4iQx8F6maPX36cIv480SDdOoQ9IVrp/s640/blogger-image-362862478.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1UaSe9yX0Slx0RrtEmuAPtdNQHGAphI0WyWQTr_uM0BQtF4gQ9RMiCOABoSMNFccgO9Im_L-T-ZrnBudtSftjpYLQP5nLwt0R3aGD5fU-nwH2xl4iQx8F6maPX36cIv480SDdOoQ9IVrp/s640/blogger-image-362862478.jpg"></a></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-6420124479788206632014-05-02T09:32:00.001-07:002014-05-02T09:34:25.341-07:00Day 177 - More Chemo and Good NewsShort and sweet post for this date. Got great news that Anna is Still in remission!!! Huge relief that she's still responding well to all the meds. Back in on this Monday for more Erwinia. <div><br></div><div>So thankful and blessed. </div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-70463551723112990582014-04-25T17:20:00.003-07:002014-04-25T17:20:53.507-07:00Day 170 - Chemo Part 4Today is April 14th and Anna is about to start her next round of chemo. Plus we await the results of another bone Marrow Test to make sure she is still in remission. We left home at 6am and drove to NYC.<br />
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So today is a packed with a lovely cocktail of Chemo's. Yeah Chemo's plural!!! </div>
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2 - injections (one in each thigh) of <a href="http://www.webmd.com/drugs/drug-158468-asparaginase+Erwinia+chrysan+IM.aspx?drugid=158468&drugname=asparaginase+(Erwinia+chrysan)+IM" target="_blank">Erwinia</a></div>
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1 - dose of <a href="http://www.rxlist.com/cytarabine-drug.htm" target="_blank">cyterabine</a> via spinal tap<br />
1 - dose of cyterabine via IV</div>
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1 - dose of <a href="http://www.webmd.com/drugs/drug-19924-Cyclophosphamide+IV.aspx?drugid=19924&drugname=Cyclophosphamide+IV" target="_blank">cyclophosohamide</a> via IV</div>
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1 - dose of <a href="http://www.webmd.com/drugs/drug-14103-thioguanine+oral.aspx" target="_blank">Thioguanine</a> by pill<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXmo-l44-2J4m6vPHhVLFk2LHMPPOVygiuZLnPxpVSInEbi5qUy3JtZ4G-83b-NqzJxJnOeRL5K9TORTJX8n-5XEg1klXA22BVxmU9Doo8uPcFhA7_Af-K_S1LhOmxUEyf3E_YUN_igydN/s640/blogger-image-1297993726.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXmo-l44-2J4m6vPHhVLFk2LHMPPOVygiuZLnPxpVSInEbi5qUy3JtZ4G-83b-NqzJxJnOeRL5K9TORTJX8n-5XEg1klXA22BVxmU9Doo8uPcFhA7_Af-K_S1LhOmxUEyf3E_YUN_igydN/s200/blogger-image-1297993726.jpg" width="149" /></a>They day started like any other at the Memorial Sloan. A quick check in with the Leukemia team. They always like to make sure that Anna is well enough for her drug mix. As always she's great and ready to go. Anna went under anesthesia and did great. While she was knocked received cyterabine and they drew her bone marrow to test. 1 down, 4 2 go! All day she was happy as a clam even though she couldn't do much. She was monitored all day as she was getting her meds. Each one had a different monitor period. Some were 1 hour others were 2. It was a very long day and there was little to no complaints at all from out favorite 9 year old. </div>
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<tr><td class="tr-caption" style="text-align: center;">just a few bags of meds making there in through her port </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Caught an early morning smile. My favorite thing in the world. </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Getting de-accessed. Finishing up the day!!! </td></tr>
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#821ForAnna</div>
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#BeatLeukemia</div>
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John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com1tag:blogger.com,1999:blog-6991094280874534918.post-65321882592535795452014-04-24T07:26:00.001-07:002014-04-28T14:09:04.626-07:00Day 176 - Hoppy Easter!<div class="separator" style="clear: both;">What can I say. Anna had a great Easter. It was her first holiday since being diagnosed that was NOT spent in the hospital. "The Easter Bunny" hid 45 eggs around the yard.</div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">Anna and her buddy Freya had a blast hunting for eggs. So happy to see her happy. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimGaR7SemqnCoUCDVkhIf75zbdCsOFX38TvZm5o9Zim58r7yCUuyIQpdm2V4U45n0HWfPVwjb8K0CJVDgxa1Hci2R9GiWyMzsEx9TP30sJUW_cINHOrR4p7M_vroSUn4zKuFwkXjd8-PL5/s640/blogger-image--1505409956.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimGaR7SemqnCoUCDVkhIf75zbdCsOFX38TvZm5o9Zim58r7yCUuyIQpdm2V4U45n0HWfPVwjb8K0CJVDgxa1Hci2R9GiWyMzsEx9TP30sJUW_cINHOrR4p7M_vroSUn4zKuFwkXjd8-PL5/s640/blogger-image--1505409956.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvpO_NuJftW3hyj4aVz1fkU4lJFpipzYZUn-MsYq485nGdLv03cJnoOgn960Omtv4vLYs1rcxpKZUychcpExYs_o5hLQPYnp7amDSLtnFYYs_cUtVRWHVJizGaOw13gRYJ7Ay6oqZJoFqM/s640/blogger-image--1685978398.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvpO_NuJftW3hyj4aVz1fkU4lJFpipzYZUn-MsYq485nGdLv03cJnoOgn960Omtv4vLYs1rcxpKZUychcpExYs_o5hLQPYnp7amDSLtnFYYs_cUtVRWHVJizGaOw13gRYJ7Ay6oqZJoFqM/s640/blogger-image--1685978398.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl_NOU1v7v-9FvqUtn8iepc5sESWR0JJGdQ_qpJieRzaKpQzmK2RFM4kloEhiZIxjBeq2aI3FKP4MLl5YKo6sKQ7JMbAniKBPD3fcbqPZrrUyCG6H8NoR5kYkHRaQ9ZfyKnjwIeMO8b69d/s640/blogger-image--1787675098.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgl_NOU1v7v-9FvqUtn8iepc5sESWR0JJGdQ_qpJieRzaKpQzmK2RFM4kloEhiZIxjBeq2aI3FKP4MLl5YKo6sKQ7JMbAniKBPD3fcbqPZrrUyCG6H8NoR5kYkHRaQ9ZfyKnjwIeMO8b69d/s640/blogger-image--1787675098.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWdsmWpZsYInceJHFGPuttI_9Pe6RQA1mGu1bpKb4rZIYnZ_v3RNTgDsWm7fwmL2f1KVuws3gb5v-LN-kl1IJflGDJdJ_VICIPHRZGNbOMKKcjo3YHAeZsQ1kG0LKxuKmN05JAtZlOPn76/s640/blogger-image--2140741325.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWdsmWpZsYInceJHFGPuttI_9Pe6RQA1mGu1bpKb4rZIYnZ_v3RNTgDsWm7fwmL2f1KVuws3gb5v-LN-kl1IJflGDJdJ_VICIPHRZGNbOMKKcjo3YHAeZsQ1kG0LKxuKmN05JAtZlOPn76/s640/blogger-image--2140741325.jpg"></a></div><br></div><br></div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-90176002597405721292014-04-09T02:55:00.001-07:002014-04-14T05:01:48.183-07:00Day 160 - UpdateThe past 3.5 weeks on Anna's joirney have been filled with ups and downs. Now being treated at Memorial Sloan Kettering cancer center in NYC. <div>We are clearly very impressed with thier team and treatment approach. While it's the same as far as drugs is all out patient. Think of it as a chemo drive through. It really makes you have to be be even more aware if everything as a a parent. Talk about needing to be responsible. This kicks it up quite a few notches. </div><div><br></div><div>Each Monday and Thursday for these past weeks have started with a 5:30 wake up so we can drive to NYC for 8am appointments. Monday is the chemo day and Thursday is the day to check her labs. <span style="font-family: 'Helvetica Neue Light', HelveticaNeue-Light, helvetica, arial, sans-serif;">Anna's been phenomenal these days. She just gets up and goes. No questions asked, never once saying "I don't want to go!" A real warrior. So proud of her. </span><div><br></div><div>The first week started as planned with her drive by chemo. It went off with our a hitch. She was doing arts and crafts almost the entire time. Gotta love it. That week Anna was feeling good but by Tuesday at noon she was started to show signs of exhaustion. However she still was up for hanging with her friends a little each day. Now, the first Thursday was a lab day but in addition she was to receive another chemo only this one time. It's called Pegaspargase <a href="http://m.cancer.org/treatment/treatmentsandsideeffects/guidetocancerdrugs/pegaspargase">http://m.cancer.org/treatment/treatmentsandsideeffects/guidetocancerdrugs/pegaspargase</a></div><div>It was a drug that Anna reviewed in the very beginning on day 8. We were told then and now that there is a chance for an allergic reaction. What's interesting is that there is a higher risk of having a reaction the second time you receive the drug rather than the first. The nurses prepped for the worst case scenario just incase. Kind of prepping for the worst but hoping for the best. As she began the treatment with the "Peg" (as it's called) I watched her like a hawk for hives, itching and signs of difficultly breathing. Now 10 minutes in to a 60 minute drip and all is good. All that changed at 11 minutes. She suddenly started getting itchy and showed a few hives. After calling the staff they were on it and by 12 minutes Anna was having a tough time breathing. At this point they were all hands on deck taking care of Anna. She was so brave I cannot believe it. A 9 year old was now surrounded by a team of 9 Dr's and nurses. All shouting different things TK each other. They stopped the drip and had her some oxygen then followed by a nebulizer to help her lungs to clear up. In all of this craziness which all lasted 20+ minutes she never even she's a tear. It's amazing however strength she has. Good news is she was feeling better but we needed to stay at the hospital for observation for the next few hours. It went off with out a hitch and 10 hours later from when we arrived , we headed home. Wow what a day! </div><div><br></div><div>The following week was much less nutso! 😜. Like clock work Tuesday chemo and Thursday labs. But then came Saturday. At about 2pm Anna had another seizure while in the car. After being rushed to Norwalk hospital she seemed stable and by 5pm the dr's at Sloan said they wanted us to bring her down for some more testing. While getting some things from home for our trip (since we had a feeling this would be an overnight journey) Mom called me at 6 to tell me she just had another seizure. This continued to be a horrific nightmare. quickly they have her a CAT scan which came back clear! Phew!! </div><div>By the time I return to Norwalk hospital there was a transport team from Sloan ready to take her. Anna was wiped out from the meds they have her to stop the seizure. She also couldn't speak. :( </div><div><br></div><div>Of we went to NYC at around 9:30pm. Arrived at Sloan. Now barely awake Anna was speaking well and no more issues. All of us barley sleeping trough the night woke up the next day for Anna to be set up for another EEG exam. Great news! No issues with her brain. Not so great news, they can not really figure out why she's having seizures, so they increased her anti seizures medications in hopes that would help! </div><div><br></div><div>One more night at Sloan brought us to Monday. Anna is still feeling great, is seizure free and ready to go home but a lumbar puncture is on order to check for any infection. 'Side note. When you are admitted over the weekend and they want to do a test on Monday mornings they "fit you in". Which means they give you time guesses just like the cable company. "Anytime today between 8-4pm. ' Now about 2:30 with Anna so hungry since she hasn't been able to each from the previous night Anna's isder anesthesia getting her LP. Once she wakes up she's sooooooo happy to eat! </div><div><br></div><div>Now Tuesday and still at Sloan we get the tentative results that's she's clear of infection. Great news! But still concerning that there is no real answer to seizure. So next up is to get her chemo, now a day late. Quick and easy, chemo done and we head home around 6pm. </div><div><br></div><div>The rest of that third week was pretty low key minus some decadron fits but Anna did great. </div><div><br></div><div>Week 4 was a rest week. No chemo and Anna simply just had a happy week. :-) <br> </div></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-61644013436255499552014-03-29T14:46:00.001-07:002014-03-29T14:46:22.125-07:00Day 136 - Back on the regular planToday was Anna's first day of getting chemo at Memorial Sloan Kettering Cancer Center (MSKCC). Anna received a new drug called Doxorubicin <a href="http://m.cancer.org/treatment/treatmentsandsideeffects/guidetocancerdrugs/doxorubicin">http://m.cancer.org/treatment/treatmentsandsideeffects/guidetocancerdrugs/doxorubicin</a><div><br></div><div>It was not pretty look at considering it was gonna in her body. She made it through like a champ! </div><div><br></div><div>Also on todays menu was good ole' Vincristine! King of constipation. <a href="http://m.cancer.org/treatment/treatmentsandsideeffects/guidetocancerdrugs/vincristine" style="font-family: 'Helvetica Neue Light', HelveticaNeue-Light, helvetica, arial, sans-serif;">http://m.cancer.org/treatment/treatmentsandsideeffects/guidetocancerdrugs/vincristine</a></div><div><br></div><div>Very different experience at MSKCC. All of this was done while Anna was hanging in the play room. It was refreshing vs having to sit and lay in a bed all day. </div><div><br></div><div>Anna continued to just go through the motions and dealt with it all with such grace. It was hilarious when she finished going to the bathroom and said "My Pee is orange.... cool! " Ahhh the innocence of being a child. Gotta love it. </div><div><br></div><div>Thankfully the day went off without a hitch! </div><div><br></div><div><br></div><div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-42311012044961902462014-03-25T05:32:00.001-07:002014-03-26T04:41:16.653-07:00Days 131 - NYC here we come!JSo we have been referred to Memorial Sloan Kettering by the head of Transplant at Cincinatti. So off we went to meet the team ! <div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjN1-lB6zG9g_zN_71yuqR1pI4q86FLR10OKQh9VftaEBNZ3lUqnLFin9Mf-PycbbuK_fjzD5but2mXPBPY1aY3ZUh2LXWmULOU7qFBdrwPF-GCeKs3q46z0IAdqNr83pR7bBeWmj6RdBXO/s640/blogger-image--248146173.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjN1-lB6zG9g_zN_71yuqR1pI4q86FLR10OKQh9VftaEBNZ3lUqnLFin9Mf-PycbbuK_fjzD5but2mXPBPY1aY3ZUh2LXWmULOU7qFBdrwPF-GCeKs3q46z0IAdqNr83pR7bBeWmj6RdBXO/s640/blogger-image--248146173.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">In one day Anna got a chance to meet her new oncologist, new neurologist, new nurses, new radiologist and of course a new kick ass child life play room! </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">From room to room we met them all. Anna had an exray to see her port was in good sanding. An EKG to look at her heart since in of the drugs she will take can have a damaging effect on the heart. We pray that doesn't happen. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">The neurologist saw Anna literally jump up in the exam table and he said " Well I guess there are no concerns of weekness and agility! I really don't need to examine her now." ( FYI he still examined her. Thank goodness. I would have felt he was not doing his job and kicked his butt) </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">We left with a clean bill on her heart and central nervous system. Plus we now have the road map for the next 8 weeks. As usual Anna took it all in stride and was nothing less than a gem for this first trip to NYC. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjF1goH9OerTHUdm1aRQWLsQRZn56cGv7Wzd26hN9N34N5reORAE-Zn32N6wx8YdvbZznMF4YQHOnNtmV_3O1M-Kg8eNs-lOjBAimyX9CqfcONl5tnSdheOgqwUR-ODs2ABV-pCxuPYPr9l/s640/blogger-image--1314063401.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjF1goH9OerTHUdm1aRQWLsQRZn56cGv7Wzd26hN9N34N5reORAE-Zn32N6wx8YdvbZznMF4YQHOnNtmV_3O1M-Kg8eNs-lOjBAimyX9CqfcONl5tnSdheOgqwUR-ODs2ABV-pCxuPYPr9l/s640/blogger-image--1314063401.jpg"></a></div>Anna, Julie and I took a #selfie in the waiting room. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpOAUC45pn2HoOupNf1Hm2sy1npVSiHuKFkxGyvg9ADscYEZXvkn8Fae3YKYNgbqtieoyTtmKWfUNZyCqkSdMriyD6en6bYoCwWON7pH7OiFqFWR_Hc5iKAhIV5vusYI4SXmxebqw2A3ti/s640/blogger-image--857075106.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpOAUC45pn2HoOupNf1Hm2sy1npVSiHuKFkxGyvg9ADscYEZXvkn8Fae3YKYNgbqtieoyTtmKWfUNZyCqkSdMriyD6en6bYoCwWON7pH7OiFqFWR_Hc5iKAhIV5vusYI4SXmxebqw2A3ti/s640/blogger-image--857075106.jpg"></a></div><br></div>Anna checking out the neurologist checking her out! </div><div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAxyTAVcs1Cf-iEZ_5yV1fCahhEgDhzrO8mGJCVH0TRQus8r3lNh1bQ0FtcV3lvvQUbyxV9NHCA8tSPijEgwdjPAvp7Vql-r9RCfecKbXP_Tc5zzNNgKdD0eFVu3wHLiL2ww735ESREE2w/s640/blogger-image--1917828226.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAxyTAVcs1Cf-iEZ_5yV1fCahhEgDhzrO8mGJCVH0TRQus8r3lNh1bQ0FtcV3lvvQUbyxV9NHCA8tSPijEgwdjPAvp7Vql-r9RCfecKbXP_Tc5zzNNgKdD0eFVu3wHLiL2ww735ESREE2w/s640/blogger-image--1917828226.jpg"></a></div>Post doctor visit Calamari at the famous Augie's in larchmont NY. As you can see Anna was in awe! </div><div><br></div><div>#821ForAnna</div><div>Rally.org/821ForAnna</div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-7928514366928239182014-03-16T03:57:00.001-07:002014-03-21T06:49:45.964-07:00Day 116 - 118 Continued - THE CINCINNATI EffectArriving at Cincinnati Children's Hospital after 14 glorious hours in the car, we were greeted by <a href="http://www.cincinnatichildrens.org/bio/d/stella-davies/" target="_blank">Dr. Stella Davies</a> & <a href="http://www.cincinnatichildrens.org/bio/p/christine-phillips/" target="_blank">Dr. Christine Phillips</a>. In our first meeting they explained why they were concerned with the results from Maria Ferari. They expressed that they were not convinced that Anna had any cancer in her body at all. In fact they were suspecting that what MFCH was seeing were something called <a href="http://www.lrjournal.com/article/S0145-2126(13)00266-X/abstract" target="_blank">Hermatogones</a>. These are normal cells that grow in the bone marrow and can become present after a round of Chemo, but they wanted to make sure. So the following day, 6:30 am Thursday - Anna saddled up for ANOTHER bone marrow test. As usual she was fantastic! <br>
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The CCH team that morning was amazing. It showed us how much more advanced this facility was VS MFCH. The cleanliness was over the top positive, and how they cared for the patient was extraordinary. It was becoming more and more clear that perhaps we were not in the best place for Anna back home. There was a reason they were # 1 <a href="http://health.usnews.com/best-hospitals/pediatric-rankings/cancer" target="_blank">Cincinnati Children's</a><br>
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So the procedure was over and now we wait 24 hours for the results. What's the best thing to do while you wait for results? Go to the <a href="http://www.newportaquarium.com/" target="_blank">Newport Kentucky Aquarium</a> of course.<div><br></div><div>Now the following morning we eagerly await the results. They say with and as told us thy Anna is in Remission and does not need a bone marrow transplant. At first we were taken back as we now have trust issues. But after they reassures us that there is an additional data point telling them the same things we were relieved, ecstatic, elated.... Ok ok we were happy! In addition to telling us that, they also shared that they dug back to the beginning of Anna's treatment and reviewed images and actual slides. What this allowed them to tell us is "Anna has been in remission since day 29" The team at Maria Ferrari was WRONG since then. </div><div><br></div><div>So now what? Clearly we were no longer comfortable at MFCH and moving to Cincinnatti for the next 2 years is not ideal. So Dr. Davies suggested Memerial Sloan Kettering in NYC. She's is friends with the head of transplant there. We concurred and she then put the wheels in motion to connect us with that team. </div><div><br></div><div>Off to celebrate now! Where too? The Cincinatti Zoo. It was awesome. <div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6bsPQrHWk6wCColmT8GHNFZm_-pt8aujUY2kS5EB5Lm0zlFvJjhEkeMSlO8sIb1ZxPGZPv4nbxGG8SVuF7GSAssJqHiC4tLO215t7R9dzwPJB2S64NDqQt9u7fOF9WHo7cF5EElDXKpzg/s640/blogger-image-1033304058.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6bsPQrHWk6wCColmT8GHNFZm_-pt8aujUY2kS5EB5Lm0zlFvJjhEkeMSlO8sIb1ZxPGZPv4nbxGG8SVuF7GSAssJqHiC4tLO215t7R9dzwPJB2S64NDqQt9u7fOF9WHo7cF5EElDXKpzg/s640/blogger-image-1033304058.jpg"></a><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg6bsPQrHWk6wCColmT8GHNFZm_-pt8aujUY2kS5EB5Lm0zlFvJjhEkeMSlO8sIb1ZxPGZPv4nbxGG8SVuF7GSAssJqHiC4tLO215t7R9dzwPJB2S64NDqQt9u7fOF9WHo7cF5EElDXKpzg/s640/blogger-image-1033304058.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglWMCLHsGRWYfGpsJ19pRPTd1FY_yjv1dOS2figupgb2e_2sMyQAyR1ivA775fLafl6F2YvAOFXbdkJHTL54d8OpnUI4zj6NxTn8PIq5zHXTvlH6viXvOESjFibtlX1CVFtY86FEdEbcVa/s640/blogger-image--827351927.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglWMCLHsGRWYfGpsJ19pRPTd1FY_yjv1dOS2figupgb2e_2sMyQAyR1ivA775fLafl6F2YvAOFXbdkJHTL54d8OpnUI4zj6NxTn8PIq5zHXTvlH6viXvOESjFibtlX1CVFtY86FEdEbcVa/s640/blogger-image--827351927.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjA_hwwAkC9ZsRc_FlTth-AXfe8DfV3_RLpzEPyX4Kr74MQcowTj4hjQwkgyB1dL2itr_e9OytAhy74xb9P4XhIx1RCbkFqnIfNs6I7t3ufPux7h69RmuQ4-_XKGruMjW1lsZctTKuDMs6/s640/blogger-image-965565316.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjA_hwwAkC9ZsRc_FlTth-AXfe8DfV3_RLpzEPyX4Kr74MQcowTj4hjQwkgyB1dL2itr_e9OytAhy74xb9P4XhIx1RCbkFqnIfNs6I7t3ufPux7h69RmuQ4-_XKGruMjW1lsZctTKuDMs6/s640/blogger-image-965565316.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6yya38zustDJcdGUT7yNe3OjdR4mrD6AIGMaUtfa7o57GsUn1BPm6K0jR0J2OH7TmPS5W_7j-gp0iHU-iFggGK5EeqlxGoa0eLkAqJFBl6zqrRwyBspcSaj3uaRsyTDYP6AeEH9TFZmaf/s640/blogger-image-1513188691.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6yya38zustDJcdGUT7yNe3OjdR4mrD6AIGMaUtfa7o57GsUn1BPm6K0jR0J2OH7TmPS5W_7j-gp0iHU-iFggGK5EeqlxGoa0eLkAqJFBl6zqrRwyBspcSaj3uaRsyTDYP6AeEH9TFZmaf/s640/blogger-image-1513188691.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">#AnnaIsAWarrior</div><br></div><br></div></div></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-63715853267315966402014-03-10T18:26:00.000-07:002014-03-10T18:28:09.594-07:00Day 116-118 State of ConfusionSo we've spent some time battling insurance companies to find out if we could have Anna's bone marrow transplant performed at Maria Fareri Children's Hospital. The answer was a consistent NO! However insurance never said she they would not pay for a transplant, but they just would not pay for it there. That left us wondering why? The more we dug the more we learned that often insurance companies will not pay for a bone marrow transplant because of the FACILITY not being a <a href="http://www.factwebsite.org/Inner.aspx?id=351" target="_blank">FACT</a> accredited facility. It has nothing to do with Dr's accepting insurance at all.<br />
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Learning more about the FACT accreditation it seemed almost as good thing that we were denied the transplant there as it opened up a world of other options. Now knowing where insurance would cover the procedure, we started to explore and found out the #1 hospital for children's cancer care is <a href="http://www.cincinnatichildrens.org/service/c/cancer-blood/default/" target="_blank">Cincinnati Children's Hospital</a> and insurance would cover Anna there. We figured if now left with having to choose a location, why not go for the best available! Quickly we engaged with the head of their Bone Marrow transplant team who immediately was concerned about Anna's case. I prepped <a href="http://www.cincinnatichildrens.org/bio/d/stella-davies/" target="_blank">Dr. Stella Davies</a> about Anna's case from start to finish and prior to getting all of Anna's files she stated the she was "very anxious" about Anna's case. This was on a friday, the same day Anna had gone in for another bone marrow test at Maria Fareri. At this point we had made the decision to visit CCH to meet Dr. Davies and her team, so we could make sure that we were comfortable getting her transplant there. <br />
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The weekend passed and we awaited the results from MFCH bone marrow test. Mid monday morning March 3rd, we get the news that Anna is presenting more cancer than she had previously. This was so heart breaking to hear. I now re-enaged with Dr. Davies right away. She now again expressed her concern and recommended we get to them ASAP to retest Anna, since CCH was not convinced as to what MFCH was seeing, nor did they feel that we should be hinging a major life altering decision like Bone Marrow Transplant, based only on one set of eyes reviewing Anna's results. After a few minutes of discussion we discussed driving all the way to Cincinnati to get Anna retested.......Just to be sure<br />
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To be Continued.....<br />
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<br />John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-49907166494368115452014-03-07T06:08:00.001-08:002014-06-02T10:32:26.241-07:005k For Anna<br />
<span itemprop="description"><span class="fsl">This event will benefit
the Anna Getner Fund as she continues her 821 day battle with Leukemia.
Her journey has been filled with ups and downs, but she is an amazing
inspirational 9 year old. We all can learn a lot from her bravery and
determination. <br /> <br /> Come run this FAST & Fun USATF Sanctioned
CLOSED Loop 5K. A great mix of road, trail and cross country. This run
is great for all levels of runners. New, Old, Seasoned, UnSeasoned,
etc.<br /> <br /> This will be a timed event and there will be awards for the top finishers<span class="text_exposed_show"> in each age group.<br /> <br /> If running is not your thing join us for the 1k Walk.<br /> </span></span></span><br />
<span itemprop="description"><span class="fsl"><span class="text_exposed_show"><u><b>REGISTER HERE</b></u> <a href="http://www.active.com/wilton-ct/running/races/a-leukemia-journey-5k-run-walk-2014">http://www.active.com/wilton-ct/running/races/a-leukemia-journey-5k-run-walk-2014</a></span></span></span><br />
<span itemprop="description"><span class="fsl"><span class="text_exposed_show"><br /> <b>CAN'T ATTEND THIS EVENT BUT WANT TO SUPPORT ANNA DIRECTLY? </b></span></span></span><br />
<span itemprop="description"><span class="fsl"><span class="text_exposed_show"><u><b>Go to</b></u> <a href="http://www.rally.org/821ForAnna" rel="nofollow nofollow" target="_blank">www.Rally.org/821ForAnna</a><br /> <br /> Thank you<br /> <br /> The team at <a href="http://www.821foranna.org/" rel="nofollow nofollow" target="_blank">www.821ForAnna.org</a><br /> <br /> <b>June 14, 2014</b></span></span></span><br />
<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show">Merwin Meadows</span></span></span></b><br />
<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show">Lovers Lane</span></span></span></b><br />
<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show">Wilton, CT</span></span></span></b><br />
<br />
<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show">- 5k run Starts at 8:15am<br /> - 1k walk starts at 8:17 am</span></span></span></b><br />
<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show"><br /></span></span></span></b>
<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show">Our sponsors</span></span></span></b><br />
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<b><span itemprop="description"><span class="fsl"><span class="text_exposed_show"><br /></span></span></span></b>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-81342144571127432162014-02-27T14:00:00.000-08:002014-02-27T19:23:06.503-08:00A bloggers noteFebruary 18. Typically this is a very symbolic day to me. 14 years ago on this day I was diagnosed with Multiple Sclerosis. I battled blindness, numb legs and A long nasty list of issues for 6 years. Since then I have been doing as much as possible to better my health, my life and provide inspiration and support for others dealing with their own battles.<br />
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Each year on that day I do all I can to thank people for their love and support but it is impossible to ever repay those who have supported me. This year that day has come and gone with out mention from me until now and it is simply because I unconsciously have put my worries aside so that I can pour my love and support into efforts of a helping a beautiful 9 year old girl. I simply forgot about me! I actually am delighted that I did forget. It means that the life of the 9 year old that I've been apart of for the past 7+ years is more important than any worry about myself. Some may call that being a parent, I call it unconditional love. </div>
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I'm blessed to be apart of her life. I've never asked for anything in return for my love and support because it's not important. What's important to me is the safety and health of my family, however unconventional it may be.<br />
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Through these now 100 + days of Anna's journey, she has tought me so much about being brave. I learn from her example everyday and it is the catalyst for doing anything that I can to help her. Simply doing what's needed to help save her life. </div>
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Some of you have heard me say this before, "I would comb the earth for that beautiful little girl if it is needed" I love you Anna and Always will no matter how you feel about me. </div>
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#821ForAnna #BeatLeukemia</div>
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John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com2tag:blogger.com,1999:blog-6991094280874534918.post-34595282120377354452014-02-25T18:31:00.000-08:002014-02-25T18:38:38.106-08:00Day 110 - Insurance Says NO to Bone Marrow transplant!In the US today, Health Care has become extremely complicated. Even more so, the logic of decisions that insurance companies make are, well, illogical! Let me paint you a brief picture.<br />
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If you are reading this, you probably have spent some time on the blog and know that Anna has been getting her treatment at <a href="http://www.westchestermedicalcenter.com/mfch" target="_blank">Maria Fareri Children's Hospital</a> in Valhalla NY. You also know that a 9 year old battling Leukemia is braver than any adult could be. Now while Anna is the bravest little girl you could ever meet, she also is still only 9 and has become accustom to the "New Normal". She is used to the frequent friendly faces at MFCH and the Clinic. In fact I know how comfortable she is based on a statement the night of her seizure, while at Norwalk Hospital. Anna said "I want to go to my hospital." I applaud all of the health care professionals that have made our little girl feel as if their hospital was her home away from home.<br />
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Ok, so here is where modern insurance makes no sense. Just in the past few days <a href="https://www.facebook.com/AnthemBlueCrossBlueShield" target="_blank">Anthem Blue Cross Blue Shield</a> has advised that they are "Denying" Anna's bone marrow transplant. Why you ask?<br />
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Perhaps it's because Anna is on some experimental treatment plan?......NO, she isn't<br />
Perhaps it's because we have exceeded our yearly expenditure?.............NO we haven't<br />
Perhaps it's because all of the Dr's Anna has seen since her diagnosis are not covered by the insurance?.....NO that's not it either.<br />
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It is because <a href="https://twitter.com/BCBSAssociation" target="_blank">Anthem BCBS</a> has a list. And on that list it doesn't not have MFChildren's Hospital as an "Approved Transplant Location"<br />
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So what does that mean? it means we can choose a hospital and a team of doctors, who do not know Anna, who have not been administering Anna's treatment, who do not understand how to relate to her, who look at her as patient ABC123, where Anna knows no one, where our family has to spend a 6-8 week time period away from home and work in a location that is more inconvenient and add additional stress to our lives during an already extremely stressful time. But I guess that's just the way to rules are now written.<br />
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Well we are not standing for this. Anthem BCBS needs to now, that not only are we going to Appeal the decision, but we are Also in touch with The Leukemia & Lymphoma Society, Connecticut Department of Insurance, <span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: Calibri, sans-serif;">Patient Advocate Foundation and Cancer Legal Resource Center to help them understand that this is not ok. </span><br />
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: Calibri, sans-serif;">It is absurd that a health insurance company wants to dictate who can do this procedure. Especially for a 9 year old. How can ask parents to pick up there child and take them to a new place with new people, who you know nothing about who will perform a procedure that is to save your child's life. I don't get it! I hope they reconsider. HELP NEEDED. Please post a link to this blog on BCBS <a href="https://www.facebook.com/AnthemBlueCrossBlueShield" target="_blank">FB</a> and <a href="https://twitter.com/BCBSAssociation" target="_blank">Twitter</a></span><span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: Calibri, sans-serif;"> Page and ask them to reconsider.</span><br />
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#821ForAnna John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com9tag:blogger.com,1999:blog-6991094280874534918.post-59117184102405486522014-02-21T05:12:00.001-08:002014-02-24T04:00:10.182-08:00Day 109 - Testing testing 1,2,3<div class="separator" style="clear: both;"><br></div>Anna underwent a couple of tests to make sure that her seizure was not signs of a neurological disorder. First up was an EEG <a href="http://www.mayoclinic.org/tests-procedures/eeg/basics/definition/prc-20014093">http://www.mayoclinic.org/tests-procedures/eeg/basics/definition/prc-20014093</a><div>To make sure her brain waves were working ok. I'm blown away by the available technology in this world. </div><div><br></div><div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjy_MjI7XKPoBf1p2sNP3Rv1Qbvfp6XxPNJUsj2P50Bg0v8JEDDhxJI1JzQnKoS2YAD0UDtin0BGjasm5nw7PWDaG9viJdMUqRV2OI8QyymbUYC0RchnV-IKKjhDF2ZVWn5EF7x0nqLGiL1/s640/blogger-image-2095556720.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjy_MjI7XKPoBf1p2sNP3Rv1Qbvfp6XxPNJUsj2P50Bg0v8JEDDhxJI1JzQnKoS2YAD0UDtin0BGjasm5nw7PWDaG9viJdMUqRV2OI8QyymbUYC0RchnV-IKKjhDF2ZVWn5EF7x0nqLGiL1/s640/blogger-image-2095556720.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">It looks much scarier than it is. Anna actually slept through most of it. Results were all good! She's got excellent brain waves :-) </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">Next up MRI <a href="http://www.m.webmd.com/a-to-z-guides/magnetic-resonance-imaging-mri" style="font-family: 'Helvetica Neue Light', HelveticaNeue-Light, helvetica, arial, sans-serif;">http://www.m.webmd.com/a-to-z-guides/magnetic-resonance-imaging-mri</a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">For this she was taken to the radiology wing of the hospital and had to wait a while before she went in. So yours truly had some fun with Anna's favorite stuffed animal "Peanut Butter" </div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicm4cNiVv-TdPkkm5QVG7eZ2MeLVNWigODL_3pwHoPwpkL2UTxnpTGQesD956n-5K54WfS-aE5AwiIR2cxrL-i6TqUzlJ7dE6RAkmmKmME-IZKnpq1Dbt9QSuJVzeMLCNfhXGP8JmnB9k2/s640/blogger-image-1715450771.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicm4cNiVv-TdPkkm5QVG7eZ2MeLVNWigODL_3pwHoPwpkL2UTxnpTGQesD956n-5K54WfS-aE5AwiIR2cxrL-i6TqUzlJ7dE6RAkmmKmME-IZKnpq1Dbt9QSuJVzeMLCNfhXGP8JmnB9k2/s640/blogger-image-1715450771.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiB-RdH4Z9j_Ae9i92iWu8Wt7fUnTwbd5wU0dKBRyla1TBs5AOh8KPuVEM_fMMHwBgUuj8x-Y0KDsVF-bqVCgKZfXYSfmxYjlxNrv0kkS7eDat7zW2JFcBq_rK8-ItH6ariLekDSPjp-bMh/s640/blogger-image--93897872.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiB-RdH4Z9j_Ae9i92iWu8Wt7fUnTwbd5wU0dKBRyla1TBs5AOh8KPuVEM_fMMHwBgUuj8x-Y0KDsVF-bqVCgKZfXYSfmxYjlxNrv0kkS7eDat7zW2JFcBq_rK8-ItH6ariLekDSPjp-bMh/s640/blogger-image--93897872.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRFKxJV2PedCRIC5pMgkybw03zX1j8WbmvfWthshBkPV0o_g9Vcm2gALuM1TBWu0ehbpoBMSndStWQPYKoOtgqk8LwME6FW-l0AnUGNb8_GMHueLHiaJanbjlr9aNsuGBsQAzLEVCT-oWc/s640/blogger-image--1965235217.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRFKxJV2PedCRIC5pMgkybw03zX1j8WbmvfWthshBkPV0o_g9Vcm2gALuM1TBWu0ehbpoBMSndStWQPYKoOtgqk8LwME6FW-l0AnUGNb8_GMHueLHiaJanbjlr9aNsuGBsQAzLEVCT-oWc/s640/blogger-image--1965235217.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcLUHt0qasdiMQ6_hEuLW_WaHjrLaElxLSRYpIndo620_VHXgAnBxOI1xjnlM8G8Xua7FgZybrr2vA9IeHjOViKBtzxQC77rorK6B47K3qFUlk73Mi26Xc087c75XV6YRxGchIAaPZGZW9/s640/blogger-image-1627780083.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcLUHt0qasdiMQ6_hEuLW_WaHjrLaElxLSRYpIndo620_VHXgAnBxOI1xjnlM8G8Xua7FgZybrr2vA9IeHjOViKBtzxQC77rorK6B47K3qFUlk73Mi26Xc087c75XV6YRxGchIAaPZGZW9/s640/blogger-image-1627780083.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFfw8tEGbUG07lgNvXpFw2n6HAC5TzpSO_89ss0ONKTRk0tli3K8vIMPGJmBXegkD0-caQJQDBa_2c2Nac8riANvr33_8tFyVEWco7xe3G-VIy7Ni7P0JcDDuEm_xcHufXlEtwd9OT1Hbu/s640/blogger-image--1780818586.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFfw8tEGbUG07lgNvXpFw2n6HAC5TzpSO_89ss0ONKTRk0tli3K8vIMPGJmBXegkD0-caQJQDBa_2c2Nac8riANvr33_8tFyVEWco7xe3G-VIy7Ni7P0JcDDuEm_xcHufXlEtwd9OT1Hbu/s640/blogger-image--1780818586.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0dOTd12cCSWhFlYiL8J6DDSIdBVP0qaJe17-GpJfZwiFbOOWSj_BoVRYxSMdGieJodOMDlicJbN7yMJlwfWN-pyzyj5OGZKQRkv5rc8L4WllzpKXDrvzzFJubhM1ZkCaX58sHWAdlaz0l/s640/blogger-image--1856445007.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0dOTd12cCSWhFlYiL8J6DDSIdBVP0qaJe17-GpJfZwiFbOOWSj_BoVRYxSMdGieJodOMDlicJbN7yMJlwfWN-pyzyj5OGZKQRkv5rc8L4WllzpKXDrvzzFJubhM1ZkCaX58sHWAdlaz0l/s640/blogger-image--1856445007.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">So the MRI was over a hour and none of us could be in the room or even walk in with her. With not even a glimmer of fear Anna went at it all alone. We played the waiting game and checked out clocks over and over. Waiting, waiting, waiting - you see the theme ;)</div><div class="separator" style="clear: both;"> When she can out d the exam room we asked how she was doing and she said "That test was really loud! I couldn't move but I had an itch so bad. The man told me to stop moving!" Moral off that quote....the kid wasn't even phased. She's amazing! </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">Oh and incase you were wondering the MRI results were Aces! </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">#821ForAnna </div><div class="separator" style="clear: both;"><br></div><br></div><br></div><br></div><br></div><br></div><br></div><br></div></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-22355651186437938082014-02-19T07:32:00.001-08:002014-02-21T04:22:29.374-08:00Day 108 - Seizure !Tonight Anna had a seizure. It was completely terrifying. So lucky the paramedics showed up so quickly. Anna came out of it all on her own. This kid is so strong and amazing. We spend the first part of the night in Norwalk Hospital. The staff there was phenomenal. They made Anna feel so comforted. It brought a tear to my eye when Anna said " I want to go to my hospital" :( <div><br></div><div>So they checked all her labs and then a CAT scan. Good news is everything was normal. Now her oncologist from Maria Fareri coordinated a transport from Norwalk to Valhalla NY. Anna loved it. They sent the STAT team. And they even let he watch gator boys during the ride. </div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIRH6HU7jkC91r-j58syKniMR-fGAhqUFbMsNXv0dd98HQ71jvE1BFygTyU0Urjx8VwDG8fQ_B5eADBPA9BdUafTgHSLJR0BqEy3UQKeEhaqAe9T_TUmljBuTFCrcoUiFgIjCEA-i0kRff/s640/blogger-image--1447065940.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiIRH6HU7jkC91r-j58syKniMR-fGAhqUFbMsNXv0dd98HQ71jvE1BFygTyU0Urjx8VwDG8fQ_B5eADBPA9BdUafTgHSLJR0BqEy3UQKeEhaqAe9T_TUmljBuTFCrcoUiFgIjCEA-i0kRff/s640/blogger-image--1447065940.jpg"></a></div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiHnnqMnthXd0eXXRSUqgLtSSLKLmMEnLjm3yFiVcUgFOfqcFZ1jGehyLK49YavtzbX6AvNm6PjliMiZHyuV3gYBW0uHxf4hgY5cT6nl3spFE7s-uX0eIsudw5SLDSjYGvDVNmuBuHOGiG/s640/blogger-image--579698431.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjiHnnqMnthXd0eXXRSUqgLtSSLKLmMEnLjm3yFiVcUgFOfqcFZ1jGehyLK49YavtzbX6AvNm6PjliMiZHyuV3gYBW0uHxf4hgY5cT6nl3spFE7s-uX0eIsudw5SLDSjYGvDVNmuBuHOGiG/s640/blogger-image--579698431.jpg"></a></div><br></div><div>Now at Maria Fareri we wait for more test to take place. MRI & EEG. Oh yeah. We are all felling a bit silly on 0 sleep. </div><div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcoWR3QKuCWOE8Ga8vy2oTxL1fKYqi5jWpDWhKzHMj4zf4X59HqG2ir7GOOGRhF_u93TE68ZLfU3gftl_e7lW-vTLzTGLQJEX5oAHK3qcmC8s55y2mBnzHhABmIMqo33FmaN_dMQmfcLxI/s640/blogger-image--1444113540.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcoWR3QKuCWOE8Ga8vy2oTxL1fKYqi5jWpDWhKzHMj4zf4X59HqG2ir7GOOGRhF_u93TE68ZLfU3gftl_e7lW-vTLzTGLQJEX5oAHK3qcmC8s55y2mBnzHhABmIMqo33FmaN_dMQmfcLxI/s640/blogger-image--1444113540.jpg"></a></div>PS sorry for the typos. This post is on zero sleep :) </div><div><br></div><div>Xoxo to all </div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-91369306526392248942014-02-19T07:22:00.001-08:002014-02-19T07:36:39.141-08:00Day 102 - 106 - More Chemo Please?<div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiO2CrvyefzdQnPHdb9fnsZMNO0dVnYa70FaqeajVCczWehpeTw8SQnzRYY6G-gbchUJdBaY8SLytB3vbKCF-GW16721AJek8ytMiYTAOYyGMipoAb9lsSCyJqEU1ncoaDsuymVaF7wmCWm/s640/blogger-image-2107012521.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiO2CrvyefzdQnPHdb9fnsZMNO0dVnYa70FaqeajVCczWehpeTw8SQnzRYY6G-gbchUJdBaY8SLytB3vbKCF-GW16721AJek8ytMiYTAOYyGMipoAb9lsSCyJqEU1ncoaDsuymVaF7wmCWm/s640/blogger-image-2107012521.jpg"></a></div><div class="separator" style="clear: both;">Back Anna went for some more chemo. No complaints, no whinning. This kid is amazing! </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicU93KHdFarqppoe-jql-aKNyMAkLN0oSff4Ke-6dOSM0xaXiHQih-jrbESNrzO5SrmsLZdhTyZ6BlXHgv-WkYc6a9q7dm1XIMspVGIamlkaXuiAQGwzLOZWxMfplSdDEYy99geNny6lRy/s640/blogger-image--458260849.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicU93KHdFarqppoe-jql-aKNyMAkLN0oSff4Ke-6dOSM0xaXiHQih-jrbESNrzO5SrmsLZdhTyZ6BlXHgv-WkYc6a9q7dm1XIMspVGIamlkaXuiAQGwzLOZWxMfplSdDEYy99geNny6lRy/s640/blogger-image--458260849.jpg"></a></div><div class="separator" style="clear: both;">Big ugly bag of chemo MethoTrexate. This drip lasted 24 hours! </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHIfypg-LzWwQKt4liBdePrt3LsReZ-IdO9npJtkeWBt4Fev_UWs-ZwZ0bodkLpIlMpmwyq1ATxTJCH6kLrGb8xwZJ2uOnmCSRPvfpbzy3FqzjUgAtTzm8O-gIVVnEGaG5XjQMTiqLXBGe/s640/blogger-image-446819387.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHIfypg-LzWwQKt4liBdePrt3LsReZ-IdO9npJtkeWBt4Fev_UWs-ZwZ0bodkLpIlMpmwyq1ATxTJCH6kLrGb8xwZJ2uOnmCSRPvfpbzy3FqzjUgAtTzm8O-gIVVnEGaG5XjQMTiqLXBGe/s640/blogger-image-446819387.jpg"></a></div></div>Just chillin' on the best pillow pet EVER</div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsYSEfDU02QbNtUTnh4qpKiNKHLV2F59JIGC-rm9wDwy6J6DhyhziSEpvPV6etEOYiQf_2786JAO7kFgdcSNa578uLuLpAw3Q2ioU0KcpwU29V8N9a-s-BzCuEBQbXFTnscH_ueZG08Rt_/s640/blogger-image--1969780824.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjsYSEfDU02QbNtUTnh4qpKiNKHLV2F59JIGC-rm9wDwy6J6DhyhziSEpvPV6etEOYiQf_2786JAO7kFgdcSNa578uLuLpAw3Q2ioU0KcpwU29V8N9a-s-BzCuEBQbXFTnscH_ueZG08Rt_/s640/blogger-image--1969780824.jpg"></a></div><div class="separator" style="clear: both;">Hospital silliness </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQv_ZhL09VHjzRBS_8SXbvWYVsAnC5yqzkcrvUfs3U9fdKdpEZpNEfA_t2nwcGCDOZ2EaF9NaeRZFtrgfdkoL2pHfStL3bNMbPeEoueie4YbcCq31fWitXVIJMLjZUO58wul5icA0X4-pj/s640/blogger-image--1849914295.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQv_ZhL09VHjzRBS_8SXbvWYVsAnC5yqzkcrvUfs3U9fdKdpEZpNEfA_t2nwcGCDOZ2EaF9NaeRZFtrgfdkoL2pHfStL3bNMbPeEoueie4YbcCq31fWitXVIJMLjZUO58wul5icA0X4-pj/s640/blogger-image--1849914295.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgViWFmvF3PaIJZFgqIqeHJZSJ5MiBFziHeMRNool5pV_yXZF0FQ7B4I6KVtaBnE1jUZelr7AIdRgxWwsxym0dTa0WlzF-8W_w4Fdfmy-RAA2fT_ZQdmZPS51bnqW47XzEa9e6-kBQTSls/s640/blogger-image-214739323.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgViWFmvF3PaIJZFgqIqeHJZSJ5MiBFziHeMRNool5pV_yXZF0FQ7B4I6KVtaBnE1jUZelr7AIdRgxWwsxym0dTa0WlzF-8W_w4Fdfmy-RAA2fT_ZQdmZPS51bnqW47XzEa9e6-kBQTSls/s640/blogger-image-214739323.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">Some blood in her urine this day. Off to ultrasound </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUjxXiKFGmO40oJZ8cy_V1MoKnh-HTlvNtO-XgCR4RuSY8WuY58DIbU9SwGlLO1Zr8YFRcUx5jIOf14HA6LK97MeP7z-ClgzBV6ykjkikt_APx55sKzj8gdy4VPWVlQRHJOtcbDLFkGGDp/s640/blogger-image--1007244056.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUjxXiKFGmO40oJZ8cy_V1MoKnh-HTlvNtO-XgCR4RuSY8WuY58DIbU9SwGlLO1Zr8YFRcUx5jIOf14HA6LK97MeP7z-ClgzBV6ykjkikt_APx55sKzj8gdy4VPWVlQRHJOtcbDLFkGGDp/s640/blogger-image--1007244056.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEja2LpGcp2QUpTmB-Pj7_N4M_LUhg9yea_sLL7UFh4NgEreTYTd2AgQYSz2uDPbzqu4nvQZoDeCDCseypkwThAyGWXn7cfroGKqxbiu0xoKw10192MS9VwJWDueB7kyBAlWJSNgOeG_K027/s640/blogger-image-518239909.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEja2LpGcp2QUpTmB-Pj7_N4M_LUhg9yea_sLL7UFh4NgEreTYTd2AgQYSz2uDPbzqu4nvQZoDeCDCseypkwThAyGWXn7cfroGKqxbiu0xoKw10192MS9VwJWDueB7kyBAlWJSNgOeG_K027/s640/blogger-image-518239909.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZz9rYotqI-GKbw-4eupnJC7maq3AIXcwj94eCGYBwHO9Do64SZG9bKquHv2tqC3tif-86SQKnjnu14JShIzclCOb8ylTTHrAOqngrqqdru6qrl8YJBYriT3eWzAdZWl2Ji0bq6UdW5PoC/s640/blogger-image--494021822.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZz9rYotqI-GKbw-4eupnJC7maq3AIXcwj94eCGYBwHO9Do64SZG9bKquHv2tqC3tif-86SQKnjnu14JShIzclCOb8ylTTHrAOqngrqqdru6qrl8YJBYriT3eWzAdZWl2Ji0bq6UdW5PoC/s640/blogger-image--494021822.jpg"></a></div><br></div>All clear! We went home Sunday February 16. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">#821ForAnna</div><br></div><br></div><br></div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-91207124929827781732014-02-12T22:22:00.001-08:002014-02-12T22:23:53.659-08:00Day 99 - Wigs, friends, candy, buffalos and bears.So it took some time, but our beautiful girl went from full head of hair to none in 5 days. She didn't get upset, took it like a champ! I know I might be biased, but she's so beautiful no mater what. So now a little light up top Anna asked for a wig. Off to NYC we went. She invited her friend Daniella to share the experience. <div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEq4gXmFe_sHaOeuvs89xL58N24tJqmZUIs6MFChfksQTdLNnwEYXKgV2rtXhRk8dyuJwNnKCVTjjcVZzJJIQYabt1Svr_v0jnBAdorLBXeAPWsabLzrs4LRHGTvKpgB0peZkKgO8HEIJs/s640/blogger-image-1297370834.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEq4gXmFe_sHaOeuvs89xL58N24tJqmZUIs6MFChfksQTdLNnwEYXKgV2rtXhRk8dyuJwNnKCVTjjcVZzJJIQYabt1Svr_v0jnBAdorLBXeAPWsabLzrs4LRHGTvKpgB0peZkKgO8HEIJs/s640/blogger-image-1297370834.jpg"></a></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">So we arrive at HairPlaceNYC and within 5 minutes Anna realized that being natural was more her game so we skipped out and headed to Imagine Candy in Scarsdale,NY for some sweets! She found gummies, jaw breakers and lollipops...Oh and more friends too. (ps notice the size of the candy bags! Um, hello dentist!) </div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7Bf8rBI-P5Zkc-cj4_GqAd8vIC9EmJXxxwnm5iOcg5fuf7CRO-DIIj1lOTko0xSH_E5SaCNlT9UgWeBYIAJjfS6bjQ7ERTgx3YCrVcXsqPLKmpOU9r7gL7d-nQ8u4XwbXW_VLo1Ef8jEe/s640/blogger-image--1816515150.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7Bf8rBI-P5Zkc-cj4_GqAd8vIC9EmJXxxwnm5iOcg5fuf7CRO-DIIj1lOTko0xSH_E5SaCNlT9UgWeBYIAJjfS6bjQ7ERTgx3YCrVcXsqPLKmpOU9r7gL7d-nQ8u4XwbXW_VLo1Ef8jEe/s640/blogger-image--1816515150.jpg"></a></div></div><div><br></div>You might say to your self, "Hmmm, what goes great with candy?" Answer the best buffalo wing of course! By request from Anna, we now headed to The Candlelight Inn for their world famous unhealthy but uber delish menu. The extra special treat for Anna was sitting next to a few of Yonkers Finest. After Anna said hello, she looked at the officers waist and said "hey you have a tazer gun! Do you use that and bring kids to Juvi? " Really i can't make this stuff up. The cops were laughing hysterically. The YPD left and pulled their Paddy Wagon out front for her with the lights flashing and siren screaming. She loved it! </div><div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHtnVklKvi8F9GknYEvtb4t0yl_vTD97a1bGhUWLdC4G01oMlYpM0wZTmHmJ6idjH3IbV-efQAT6u8IYsoHwn5VEsnS1m3OXav_rMSQugZN6TJVwSadX4nsiop_oali6l5KrSku7IBoFDa/s640/blogger-image-1699793385.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHtnVklKvi8F9GknYEvtb4t0yl_vTD97a1bGhUWLdC4G01oMlYpM0wZTmHmJ6idjH3IbV-efQAT6u8IYsoHwn5VEsnS1m3OXav_rMSQugZN6TJVwSadX4nsiop_oali6l5KrSku7IBoFDa/s640/blogger-image-1699793385.jpg"></a></div><br></div><div><br></div><div>So with 20 buffalo wings, nachos, burgers and French fries behind us we headed off to "The Westchester" to Build a Bear Workshop of course. Anna and Daniela had the best time ever! It's a complex process and you certainly cannot rush perfection. But how stinking cute is the result!</div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmuK4eCcWqk0i_qrw9JbVF_kRv4DjQI2EVtDD3IuhSTvF3a82aWzKm0Lg-KoaRM5Aj_nuMyIOGOyz-3m80ymxfqWmuXrV7bryJLRTcxEAq4vsoKr3aWJYOEBNEPs0wvScSbEtVa0rsMXs_/s640/blogger-image--851789139.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmuK4eCcWqk0i_qrw9JbVF_kRv4DjQI2EVtDD3IuhSTvF3a82aWzKm0Lg-KoaRM5Aj_nuMyIOGOyz-3m80ymxfqWmuXrV7bryJLRTcxEAq4vsoKr3aWJYOEBNEPs0wvScSbEtVa0rsMXs_/s640/blogger-image--851789139.jpg"></a></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEZXUSw7UrA1jtgmINGJ4LH64YazKy2ZtQ3my6DmCpYjsPTeHYLuZnhH2SjXnlzB1YM1SltGCPW3yY6JP6jKiYlKcBROzDIrVCkS-y89T0NsSfuXk3vOazLZ-sh_dNYQx1AO3arrl-cIpg/s640/blogger-image-2071207591.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiEZXUSw7UrA1jtgmINGJ4LH64YazKy2ZtQ3my6DmCpYjsPTeHYLuZnhH2SjXnlzB1YM1SltGCPW3yY6JP6jKiYlKcBROzDIrVCkS-y89T0NsSfuXk3vOazLZ-sh_dNYQx1AO3arrl-cIpg/s640/blogger-image-2071207591.jpg"></a></div><br></div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;">As this was our last stop of the day on the fun train, the girls walked the mall for a bit. It was both adorable and a scary preview of the future, but we loved seeing her so happy and filled with joy. </div><div class="separator" style="clear: both;"><br></div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilStQAmGNvh-wleVF583tpFFPeTv6y5LK9Ph_Mc2SnkRc_RcRPXtAgeLDlmaYuH9GCxN5luZb26IqsrarPBY9vDNyoP3b9er6lc6n8LBdyacEPizC5c5wdQHDPdDJ3_SGTs_tiTF23XIh5/s640/blogger-image-239313868.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilStQAmGNvh-wleVF583tpFFPeTv6y5LK9Ph_Mc2SnkRc_RcRPXtAgeLDlmaYuH9GCxN5luZb26IqsrarPBY9vDNyoP3b9er6lc6n8LBdyacEPizC5c5wdQHDPdDJ3_SGTs_tiTF23XIh5/s640/blogger-image-239313868.jpg"></a></div><br></div>This post if filled with happy thoughts and memorable moments. I'm delighted to capture this as who knows what lies ahead. Anna is so strong and in almost 100 days of chemo therapy treatment, she has really not lost any of her energy. She's amazing and I love her to pieces! </div><div><br></div><div>Xoxo</div><div>#821ForAnna</div><div><div><div class="separator" style="clear: both;"><div class="separator" style="clear: both;"><br></div><br></div><br></div></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com1tag:blogger.com,1999:blog-6991094280874534918.post-31049607642415765572014-02-06T05:14:00.001-08:002014-02-06T05:14:50.488-08:00Day 95 - SNOW DAY!!!!What kid doesn't love a snow. Not sure why, but as kids we all seem to be pre wired to love it. For Anna today was no exception. <div><br></div><div>I had the luxury of spending this snow day home with her. What a day full of Joy for us both. Her smile and energy is contagious. I strive to be as brave as her.</div><div><br></div><div>Oh yeah, did I mention she loves snow? #821ForAnna </div><div><br></div><div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-nxX2RAHJssjKk-jlPupnP2cc5Ei35H9IYC9qWBhtbwyCeEwAvverdPAtzSHJ1EXCc5vxkvcOA7ipJX5eaccROBWgOuDWLWbymp6NLumVss1sxEnT1WEGnyrltSc4cqN2rCWyRGmsgVqB/s640/blogger-image--1107583839.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-nxX2RAHJssjKk-jlPupnP2cc5Ei35H9IYC9qWBhtbwyCeEwAvverdPAtzSHJ1EXCc5vxkvcOA7ipJX5eaccROBWgOuDWLWbymp6NLumVss1sxEnT1WEGnyrltSc4cqN2rCWyRGmsgVqB/s640/blogger-image--1107583839.jpg"></a></div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-42387229972325452632014-02-04T03:37:00.001-08:002014-02-04T03:37:03.776-08:00Day 92 - The day 272 lives could be saved!<div class="separator" style="clear: both;">
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<span style="color: black;">Today was the day that Anna's School hosted a Bone Marrow drive in her honor.
This was a day of pure joy for Anna, as she saw her entire community
Rally just before her eyes. The turn out and support is
something I will never forget for the rest of my life. Over 500 people came out to not only support her but to offer a gift to save her life. Couple this with all of the generous donations that people extended to us for Anna's health care expenses leaves me kind of speechless. </span><br />
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<span style="color: black;">When a family member/ close friend or stranger offers to get thier cheek swabbed to see if they are a match to potentially save your step-daughters life.... it is overwhelming. How do you even begin to start expressing your thanks? This is the reason that this post is coming days after the event. I do not know how to express my deepest thank you to all! What makes it even more overwhelming for me is that I cannot get swabbed, I could potentially be a perfect match but since I have Multiple Sclerosis, I am not a viable potential candidate. :( Now a little a more bout the event.</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjIXcz70xW7zh0o1pDiuRe24E1EhTvxwByNlZmmN1ZXx1Fa2Tchk0aEXdsSCJcfBRqPEEPR2ic89-8ajo8RFxRqc_P0RCx-uJ0LwrULt-VDJ1lmSc2DBCvaa2-H9DD2g0BMIJ3Tu7_lTQU/s1600/IMG_0135.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjIXcz70xW7zh0o1pDiuRe24E1EhTvxwByNlZmmN1ZXx1Fa2Tchk0aEXdsSCJcfBRqPEEPR2ic89-8ajo8RFxRqc_P0RCx-uJ0LwrULt-VDJ1lmSc2DBCvaa2-H9DD2g0BMIJ3Tu7_lTQU/s1600/IMG_0135.JPG" height="133" width="200" /></a></div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQZh5gsw09dx_U8AYXQAOwvQoR1eEW6n0NItcWhLI-G_L-1CY2_a3Kc8nQvEks5r1kgpV2T5gNBCTZruf5KUIiWBQ3lP_3-BZez4ixcl1eMm0wWNyyvzLQ_Yx7zb6Ht84m9lZTDnPQhO8g/s640/blogger-image-1655670558.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="149" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQZh5gsw09dx_U8AYXQAOwvQoR1eEW6n0NItcWhLI-G_L-1CY2_a3Kc8nQvEks5r1kgpV2T5gNBCTZruf5KUIiWBQ3lP_3-BZez4ixcl1eMm0wWNyyvzLQ_Yx7zb6Ht84m9lZTDnPQhO8g/s200/blogger-image-1655670558.jpg" width="200" /></a><span style="color: black;"><br />The donor drive was from 10-2 Saturday February 1st. At 9:35 there were already 15+ lining up ready to offer up their marrow! Anna's cheerleading buddies showed up to support by selling "Wilton Cheers for Anna" car magnets who raised over $1400! Another Young girl Alexa Steckel was there to support Anna with her <a href="https://www.facebook.com/HelpChangeCancer" target="_blank">Help Change Cancer</a> cause. She raised over $400! Last a group of young ladies also sold hair bows at their "The Bow Flow" table selling over $150 of their bows for Anna.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTby69F5txV7IYkWYwfm1Bg0J0az2_vL9AqabqyOtFAuQDGn___W0YL3-wHgZPA1EqArdstyVleUQiuHzQpjvcu9NAD0j71svOWDbhDq9_sJBki7jlH0BkmBmXHgRTnDMsbeK6HU8lPt9C/s640/blogger-image-812913616.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="238" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTby69F5txV7IYkWYwfm1Bg0J0az2_vL9AqabqyOtFAuQDGn___W0YL3-wHgZPA1EqArdstyVleUQiuHzQpjvcu9NAD0j71svOWDbhDq9_sJBki7jlH0BkmBmXHgRTnDMsbeK6HU8lPt9C/s320/blogger-image-812913616.jpg" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDYNFkoeBmxePi0o6OB0M8yASCrQ2VH132ejibQbFbgKnjt0orvYL0d0cuqAtWc1xrQ9c_XQaknafoPmwIlTJRMgTLXtUbU_MonqOg1K3YetptXe5XEHYpbd_-J4-OcvDi3gT2ZsFTWO68/s640/blogger-image-894983323.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNFr653Iiqw7AXdlgeJLdrsoYnJP7rl8ZjAvMjBuCMfJftScR8-lBTI6IAwFebzZtVzkku-3nkRNc1eNoARSq4r1sxBS7CyQv_8LszvOcXUFfdy2OP2mQZDN8xQcAvqxNWGD9k-g15AmQC/s1600/IMG_0152.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjNFr653Iiqw7AXdlgeJLdrsoYnJP7rl8ZjAvMjBuCMfJftScR8-lBTI6IAwFebzZtVzkku-3nkRNc1eNoARSq4r1sxBS7CyQv_8LszvOcXUFfdy2OP2mQZDN8xQcAvqxNWGD9k-g15AmQC/s1600/IMG_0152.JPG" height="213" width="320" /></a><br />Now half past 10am and the Cider Mill cafeteria was chock full of supporters filling out their forms prior to getting their swab on! There was a non stop flow like this until the end of the drive. Parents, teachers, old friends we hadn't seen for over 20 + years, strangers who just want to help and so many more showed up. in the midst of all of this Anna showed up at about 10:45 and she was smiling ear to ear. Feeing quite like a celebrity for the day! It was so amazing to see her there. So So So happy, playing with her friends, running up and down the halls of her school, cheering with her cheer squad....just priceless. It could not make this step parent any more happy than to see her like this.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghQ8M87xsFBov_htdexdMarIF32CwoXXdQBWigz-q35b-pB344U7qVX3mBt_EwsVUGLI-tqNxUJAbWFT7SIrNE8XbhVQAdqYBGcu55fT7sbopWRdinSav9TxryG6yzo7_HYkYyuXhWEOnh/s640/blogger-image--2053102590.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="148" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghQ8M87xsFBov_htdexdMarIF32CwoXXdQBWigz-q35b-pB344U7qVX3mBt_EwsVUGLI-tqNxUJAbWFT7SIrNE8XbhVQAdqYBGcu55fT7sbopWRdinSav9TxryG6yzo7_HYkYyuXhWEOnh/s200/blogger-image--2053102590.jpg" width="200" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6hSQeuh-8yL-V9s6Cix6IMhEJ108Nd8IDH2_9M9SG-a1Pp0grvO-Md1ydrq4p3B-bxlpXp_NCCMN4KBE8t4fsd8SFxhFTIJiaC4eRG_OaZxfEEI0bqUmbD4DpfAX78-MhIVQCxrD5HZMp/s640/blogger-image-1322972679.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6hSQeuh-8yL-V9s6Cix6IMhEJ108Nd8IDH2_9M9SG-a1Pp0grvO-Md1ydrq4p3B-bxlpXp_NCCMN4KBE8t4fsd8SFxhFTIJiaC4eRG_OaZxfEEI0bqUmbD4DpfAX78-MhIVQCxrD5HZMp/s200/blogger-image-1322972679.jpg" width="149" /></a>Mean while hard at work was the <a href="http://bethematch.org/" target="_blank">Be The Match</a> foundation, swabbing away. It was pretty amazing that 2 representatives handles a crowd of hundreds! While the support of the town was amazing, these 2 individuals from BeTheMatch were doing the deed of collecting life saving DNA. It gives me chills just to think about it.</div>
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At 2:17 pm The counts were now in........272 donors now added to the Bone Marrow registry!! Wow!!! Amazing, to think that in 4 hours we could have saved 272 lives...and hopefully one of those lives is Anna's <3</div>
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THANK YOU WILL NEVER BE ENOUGH, but its a start. THANK YOU THANK YOU THANK YOU</div>
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Here is a link to the <a href="http://goodmorningwilton.com/wilton-turns-out-by-the-hundreds-to-help-anna/" target="_blank">Good Morning Wilton</a> story about the day.</div>
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<tr><td class="tr-caption" style="text-align: center;">Pretty girl with her cheer buds!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2ywVXbVi8Xe91I_y51pUTJKbSqy2xhOJV9yN7athWjLT0H3IZEX9CRmY5CJp6VdPFcdJdHsC_Grx1qrUH3x5AnM4C9i4_AZllgjgWgW-I8mxg-t4-rm3nWJoBZubtuQPQ1yzMVvddt48K/s1600/IMG_0161.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh2ywVXbVi8Xe91I_y51pUTJKbSqy2xhOJV9yN7athWjLT0H3IZEX9CRmY5CJp6VdPFcdJdHsC_Grx1qrUH3x5AnM4C9i4_AZllgjgWgW-I8mxg-t4-rm3nWJoBZubtuQPQ1yzMVvddt48K/s1600/IMG_0161.JPG" height="213" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Heather getting her swab on!!!!</td></tr>
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John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com1tag:blogger.com,1999:blog-6991094280874534918.post-8227069211308128852014-01-25T01:55:00.002-08:002014-01-25T01:55:57.106-08:00Day 81-85 - Hospital Days<div class="separator" style="clear: both; text-align: center;">
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Anna started her 2 round of Chemo and she's kicking ass! Not one compliant this entire hospital stay. She was happy and full of energy. The week was much better than any time we had ever spent in the hospital before. We were so luck there were not any complications this time around. <br />
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Aside from getting chemo here's all the other things that happened this week.<br />
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<tr><td class="tr-caption" style="text-align: center;">Wished upon a star!</td></tr>
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<tr><td style="text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXeznw5Nh_ul_KJ6jzEuE1pIrPqaXl5Dtdv7VCDVpGaZhFAH8cOhUuyvUdViHvso507-MRmuFRZY5zZ8Ro7exjCeEVqsqwfxj1S79jEhJeiSIhOp6DziSxolNOnboBBHtRvMMjE7VdWoRL/s1600/blogger-image--1218539980.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXeznw5Nh_ul_KJ6jzEuE1pIrPqaXl5Dtdv7VCDVpGaZhFAH8cOhUuyvUdViHvso507-MRmuFRZY5zZ8Ro7exjCeEVqsqwfxj1S79jEhJeiSIhOp6DziSxolNOnboBBHtRvMMjE7VdWoRL/s320/blogger-image--1218539980.jpg" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Posed for a picture with her Dr's</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHfahBhxMoahgAvzqJNABXsYRae-ADccGhUsRT4-Ihiw3s6-6r8r61h4uy54v1o6CYDZynkjG78eNkhEO4LFxjXBsg1qI7BE1XQUKl1TiMwSAVR4WVB_P-P-cHdfq8r5-R5OlLybJCqJ4d/s1600/blogger-image--945419254.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHfahBhxMoahgAvzqJNABXsYRae-ADccGhUsRT4-Ihiw3s6-6r8r61h4uy54v1o6CYDZynkjG78eNkhEO4LFxjXBsg1qI7BE1XQUKl1TiMwSAVR4WVB_P-P-cHdfq8r5-R5OlLybJCqJ4d/s320/blogger-image--945419254.jpg" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Kicked A$$ Playing Trouble</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Drove fire truck</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Played with Old Friends</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Made New Friends</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnqqASq5CUuzBcK7etWE9u_-E30qZ7lWt0i793Igxe9eIs3-Pt0Dgos7IkDVqtY1hhyGmeaf_BBs3MMX64nyWNUFOYlVFwcVIki3QTLwMX4OJwQw21QC0rlaxwQc8cPfv8PqzNBkpkDxmi/s1600/blogger-image--1313766323.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnqqASq5CUuzBcK7etWE9u_-E30qZ7lWt0i793Igxe9eIs3-Pt0Dgos7IkDVqtY1hhyGmeaf_BBs3MMX64nyWNUFOYlVFwcVIki3QTLwMX4OJwQw21QC0rlaxwQc8cPfv8PqzNBkpkDxmi/s320/blogger-image--1313766323.jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Met and Army Guy! (She was bummed that he was not single or as she said "Tooken") </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Made Ridiculous Faces</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVEHyGgajyvn2lHBgoJV0ckcIE7-zcRGiQnLdCgXASF93kK1SYWpZf97qoiY0bcK-0Gn1n8yNK3JS98xJilV04aW_4bST1UXCfmTB47sPauXnfZ6gxdMtI4_oJS6183neMgSFC3aOI066I/s640/blogger-image-1513704051.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVEHyGgajyvn2lHBgoJV0ckcIE7-zcRGiQnLdCgXASF93kK1SYWpZf97qoiY0bcK-0Gn1n8yNK3JS98xJilV04aW_4bST1UXCfmTB47sPauXnfZ6gxdMtI4_oJS6183neMgSFC3aOI066I/s320/blogger-image-1513704051.jpg" width="238" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Learned how to give her self and injection on an orange</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXeznw5Nh_ul_KJ6jzEuE1pIrPqaXl5Dtdv7VCDVpGaZhFAH8cOhUuyvUdViHvso507-MRmuFRZY5zZ8Ro7exjCeEVqsqwfxj1S79jEhJeiSIhOp6DziSxolNOnboBBHtRvMMjE7VdWoRL/s1600/blogger-image--1218539980.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiXeznw5Nh_ul_KJ6jzEuE1pIrPqaXl5Dtdv7VCDVpGaZhFAH8cOhUuyvUdViHvso507-MRmuFRZY5zZ8Ro7exjCeEVqsqwfxj1S79jEhJeiSIhOp6DziSxolNOnboBBHtRvMMjE7VdWoRL/s1600/blogger-image--1218539980.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a> <br />
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John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com2tag:blogger.com,1999:blog-6991094280874534918.post-88925493237876572172014-01-19T18:31:00.001-08:002014-01-20T19:10:35.768-08:00Day 80 - I got your chemo here!Today Anna once again entered the hospital fearless to start her 5 days of chemo. So far no side effects. She continues to amaze us. We are more scared than she is. <div><div class="separator" style="clear: both;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggNss2FML4Lo8AO5mK-YiIyZp_LKgnKyrXTY-G75SL_U8j0VMIXY5jaxO8Y_p9ZcuA8D6AXfFu6FI3ejEE6nNLc57HoWOb-llkiOaPyYwb_vx32KruLdYYgwKk9M3TujY8UaaFk4GJlUys/s640/blogger-image--1750099046.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggNss2FML4Lo8AO5mK-YiIyZp_LKgnKyrXTY-G75SL_U8j0VMIXY5jaxO8Y_p9ZcuA8D6AXfFu6FI3ejEE6nNLc57HoWOb-llkiOaPyYwb_vx32KruLdYYgwKk9M3TujY8UaaFk4GJlUys/s640/blogger-image--1750099046.jpg"></a></div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-86942897250951424962014-01-18T15:48:00.001-08:002014-01-18T15:53:10.223-08:00Day 79 - CHOP-it like it's hot!!Today we took a road trip to the land of brotherly love.....PHILLY! We were very fortunate to get connected with one of the nations finest Leukemia doctors. <a href="http://www.chop.edu/doctors/rheingold-susan-r.html?view=2" target="_blank">Dr. Susan Rhiengold</a> at the <a href="http://www.chop.edu/" target="_blank">Children's Hospital of Philadelphia CHOP</a><br />
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Having to make a decision that can affect the outcome of your child's life is the scariest decision you could ever have to make. We wanted to be well informed and compare notes from one great hospital to another. The night previous we explained why we were going to Philly. Anna took it better than you could expect. When we finished trying to be responsible parents she said "Ok, I'm getting tired.....Can we read now?" Clearly she has no fear. It is amazing.<br />
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We hit the road from Wilton, CT at 5:15am for an appointment in downtown Philadelphia at 9am. It wasn't a bad ride, just a few dozen stops for the bathroom along the way :)<br />
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As we arrived at the hospital around 8:45 am, we were awe struck. The facility was breathtaking!! As we entered one of the largest and oldest childrens hospital in the world, we were greated with nothing but the best treatment. From check in to check out.....Amazing<br />
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Collectively with the help of CHOP and Anna's current Dr's we came up with a treatment plan. After long discussions talking about 15+ different Chemo drugs and protocols and side effects and "What If's" and and and....We pray that we made the right choice. Part of that plan means a Bone Marrow Transplant for sure! Great news is Anna will be treated close to home at <a href="http://www.westchestermedicalcenter.com/mfch" target="_blank">Maria Fareri Children's Hospital</a> <br />
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OK, we now headed of to the <a href="http://www.adventureaquarium.com/" target="_blank">Adventure Aquarium</a> in Camden NJ for a fun filled afternoon. It was pretty awesome!! Anna loved it. We saw Hippos, Sting Rays, Penguins and so much more. I loved seeing her love the day! <br />
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Help Anna by joining the Donor Registry and #GETSWABBED live at https://www.facebook.com/events/600218223406612/ or virtually at BeTheMatch.org<br />
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Thank You<br />
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<tr><td class="tr-caption" style="text-align: center;">Anna with Dr. Rhiengold</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">We were looking for a frog. Love her!!!!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS-Sq76IChYEDQSnLU2ZRv5_2vSezjbMQfHOJROilbeET4vlW4IBaK1pJrxVs4kletNRIeT0nOnJnuvYahQ4XkNA54-PlVbl_ejviv-FiQ5yMezpjJG5-mPlFnKEZeGpRsacPAG2iYvyax/s1600/anna+coloring+at+CHOP.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS-Sq76IChYEDQSnLU2ZRv5_2vSezjbMQfHOJROilbeET4vlW4IBaK1pJrxVs4kletNRIeT0nOnJnuvYahQ4XkNA54-PlVbl_ejviv-FiQ5yMezpjJG5-mPlFnKEZeGpRsacPAG2iYvyax/s1600/anna+coloring+at+CHOP.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Getting her art on at CHOP</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSPe87A5bOHYZj56pgyn_IMWv6tWWZaE-rjsmltyUZfvUHEri-97yMjxVLSDvRiSJIRp4-IRHtByKjySqrtlhrLuq5_r49skACIpzpfwdNJLC3ZwpyiH0ZeOtjV_V4ctUCr2MiSF9u-BIV/s1600/anna+with+stuffed+dalmation.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSPe87A5bOHYZj56pgyn_IMWv6tWWZaE-rjsmltyUZfvUHEri-97yMjxVLSDvRiSJIRp4-IRHtByKjySqrtlhrLuq5_r49skACIpzpfwdNJLC3ZwpyiH0ZeOtjV_V4ctUCr2MiSF9u-BIV/s1600/anna+with+stuffed+dalmation.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Kid even loves fake dogs!!!</td></tr>
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<br />John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0tag:blogger.com,1999:blog-6991094280874534918.post-33894263785821836842014-01-14T05:40:00.001-08:002014-01-14T05:40:38.757-08:00Day 75 - The Matching GameToday Anna heads in for a routine blood draw. While the process to do this is routine, the magnitude of this particular blood draw is monumental. See, The next step for Anna'a treatment a bone marrow transplant. For this we pray there is an appropriate match for her. <div><br></div><div>From the time they draw her blood today it will take 3 weeks to check the global donor database for a match. During this time Anna will undergo an even more intense round of chemo than the first one that didn't work. For this we will live in the hospital for 3-4 weeks. We pray for a match. This will be the longest few weeks of our lives as we wait. </div><div><br></div><div>If you are interested in stepping up to be a match, you can visit BeTheMatch.org</div><div><br></div><div>Thank you </div><div><br></div><div><br></div>John Schiarolihttp://www.blogger.com/profile/05605004309154425777noreply@blogger.com0