Day 170 - Chemo Part 4

Today is April 14th and Anna is about to start her next round of chemo.  Plus we await the results of another bone Marrow Test to make sure she is still in remission. We left home at 6am and drove to NYC.

So today is a packed with a lovely cocktail of Chemo's.  Yeah Chemo's plural!!! 

2 - injections (one in each thigh) of Erwinia

1 - dose of cyterabine via spinal tap
1 - dose of cyterabine via IV

1 - dose of cyclophosohamide via IV

1 - dose of Thioguanine by pill

They day started like any other at the Memorial Sloan.  A quick check in with the Leukemia team.  They always like to make sure that Anna is well enough for her drug mix.  As always she's great and ready to go.  Anna went under anesthesia and did great.  While she was knocked received cyterabine and they drew her bone marrow to test.  1 down, 4 2 go!  All day she was happy as a clam even though she couldn't do much.  She was monitored all day as she was getting her meds. Each one had a different monitor period.  Some were 1 hour others were 2.  It was a very long day and there was little to no complaints at all from out favorite 9 year old. 

just a few bags of meds making there in through her port 

Caught an early morning smile.  My favorite thing in the world. 

Getting de-accessed.  Finishing up the day!!!  

#821ForAnna

#BeatLeukemia

#Love

Day 58 - Fearless Fun

So I will admit that as parents of a child with Leukemia we worry constantly.  Anna has little to no immune system right now so we are terrified of her catching a bug. It stinks because as much as we want to protect her from additional illness we also want her to be a regular kid. 

This day was no different. While she was excited to go off to the play ground, Stepdad was neurotic. "What if there are germs! Be careful, don't fall. Wash your hands. Disinfect." You get the point. As a parent its hard to let her be a "kid" right now, even though we want her to be. So when she is, it brings great joy....and her fearlessness helps us to be so too! 

What a beautiful smile! She's gorgeous <3

#821ForAnna